Help Former Mets GM Fight Kidney Disease
By Mike Silva ~ June 1st, 2009. Filed under: Announcements.
I wanted to pass this along. Lindsey Duquette, The daughter of former Mets GM Jim Duquette, has been struggling with some health issues over the last few years. The Duquette’s are trying to raise some funds to help research nephrotic syndrome. To date there is no cure for the disease. Take a read, and if so inclined, click on the link below to make a donation.
Hi. My name is Lindsey and I am a seven-year-old first-grader. I was diagnosed with nephrotic syndrome one day when I was 2½ years old and on my way to a baseball game. No one knows what causes my kidney to malfunction, and it happened to me “out of nowhere.” There is still no cure. Over the past five years, I have been in and out of the hospital over 20 times. The worst was for 10 weeks straight. I’m taking 14 meds per day and they have continued to hurt my bones. I’m still home-schooled most of the year because my immune system is so low, but I’m also making progress because of your prayers and the help of an experimental drug that I took recently. It’s through your continued contributions that the doctors have a chance to find a cure and make my future brighter. Please donate whatever you can to help me and other kids like me. Thank you!! Love, Lindsey
Click here for donation information.
June 1st, 2009 at 11:22 pm
Hey Mike – Thanks for passing this along. Let’s find a way to get as many people as possible to find out about this and help. I’m praying for her.
- Jimmy
June 2nd, 2009 at 2:14 pm
Lindsey,
my name is Jessie, I read your letter, and you are such a brave little girl from what I read. I am 21 years old and guess what? I know what you are feeling, I have been fighting my kidney disease since I was just 1 year old, can you believe that? You will fight this, together you and I will fight our diseases with the help of prayer and friendship…. doctors don’t know much, but you know what? Doctors didn’t know I was going to make it to the age I am at now. You will fight this Lindsey. I know that sometimes it seems like a pain you have to take all of those medications, but it’s a hope to know that you will get off of them one by one until you’re only taking 3 or 4 meds, it’s a long shot I know, but it was at one point a long shot in my life, and I made it through without taking blood pressure meds, and I was on 3 of them when I started dialysis. Lindsey, stay strong, keep smiling, because prayers will be on your side with the help of your friends and family, keep fighting…..most of all don’t let anyone tell you, you can’t do something just because you are very sick, because you can! Take it from me, I am now heading into my junior year of college as a vet tech (animal nurse) student, nothing has stopped me, nothing will stop you, stay strong, never give up! Reach for the stars!
December 10th, 2009 at 11:08 am
An FDA advisory panel just recommended yesterday that the warning label for Covidien’s Optimark and GE’s Omnisca—drugs in the family of medications known as gadolinium-based contrast agents (DBCAs)—be updated to restrict their use in patients with severe kidney disease because of the potential for an increased risk of nephrogenic systemic fibrosis (NSF). NSF causes thickening of the skin and organs. GBCAs carry a strong “black box” warning. This site has good information on this issue: http://www.gadolinium-mri.com/index.html